I would be in and out, other people would spend the night, which would be fine, plenty of room for everyone. What became of them? I hadnt meant this to be my career. Its important to think about your intentions before you start, my friend told us. Sooki was making dinner. They were flying out at the end of May. You think youre getting chemo three Wednesdays a month but really its a test to measure the effectiveness of kundalini yoga and kohlrabi. I had signed up for a farm-share box, and every week we were overwhelmed with pounds of mysterious vegetables. And who wouldnt be given the fact that Raphael didnt really emerge as an artist until her pancreatic cancer diagnosis in November 2018. This was eight hours of hard labor. Why shouldnt I read one? By the time the book is written, there is little evidence of the initial spark or a long-ago conversation in California Pizza Kitchen. I couldnt stay upright, a hangover from the last eight hours in which I had been quite memorably deboned. Sooki had downloaded it. He talked to his patients on the phone. How it happened is told in the title story of These Precious Days, Patchett's second collection of essays. Welcome to the last book event on earth, I said when I walked onstage. Never want to see this again? Ann Patchett one night happened to read a short story by the actor Tom Hanks, surprised by its literary quality. She took off her cap to show me the damage. We werent the only ones who felt restless. Hanks and his wife, Rita Wilson, also recognized the rare talent that was Raphael. Would you feel better about it if I did it with you?, She looked at me. There was no money or freedom or wherewithal to buy another ticket and see him sooner. The wind was coming down the street like a train. I dont want to give that up., Youll never have to give up the friendship or the love, I said. SANTA MONICA, CA.-. In her tribute to Raphael, Wilson pointed to her friend as proof that it is never too late to explore your creative passions. He watched classes on his computer and worked through calculus problems at the dining-room table. Every morning before breakfast, we waved our hands in the air. Before I can start writing a novel, I have to know how it ends. Many people loved it; some dared to hate it. But by the time Karl and Sooki left for the airport she was happy. One morning Sooki had coffee with Sister Nena and me before she went to a yoga class across the street from the restaurant we went to for breakfast. Back before she came, when she was still insisting on finding a hotel, I asked her if we could talk for just a minute on the phone. And I want you to explain why that felt easier to write during a pandemic than fiction. PATCHETT: It was so incredible and joyful to be together and to make that kind of a friendship that you make in college, you know, with your roommate, with this total stranger who you are assigned to live with who then becomes your best friend. She had their protection, and that knowledge had opened up so much time in the day. I was introduced to Tom Hankss editor, Tom Hankss agent, his publicist, his assistant, Tom Hanks himself. So, I was surprised on my first scheduled day of radiation to have another technician pop in with a red sharpie to make three large xs near the tattoos as additional points of reference and stick clear round stickers over them. Ive had a happy life because of her.. She had transferred her life into brushwork, impossible colors overlapping, the composition precariously and perfectly balanced. I took her to the J.M.W.Turner exhibition at the art museum. RoseGallery is pleased to present These Precious Days, a solo exhibition of paintings by Sooki Raphael, on view from 10 April until 10 May, 2021. The essay, "These Precious Days," chronicles Patchett's meeting with actor Tom Hanks, who was promoting his first book of short stories, Uncommon Type, and had asked Patchett for an endorsement. The authoritative record of NPRs programming is the audio record. Hell make sure you get everything you need. I told him she worked for Tom Hanks, that wed struck up a little friendship over email. People were sitting in their cars, in their driveways, charging their phones. Im a good packer. She told me she had packed for good cheer, having had the reasonable expectation that times would be hard and cheer a necessity. I could see Ken and how hes always been there for me, how he steps back to let me shine. KELLY: (Laughter). Thats worth everything.. I thought some nights my back would snap. She told me that at home she had become impatient and angry. Then, we ended up staying in touch very lightly - you know, an email every month or two. She wrote home with vivid tales and photographs that demonstrated the color and beauty of her travels in the most unique ways. She had moved in before the pandemic. Need to create a login? PGVs (pathogenic germline variants) are changes in reproductive cells (sperm or egg) that become part of the DNA in the cells of the offspring. How Does the Story End? Id seen her work in action. She was right here, Karl said. There was no hesitation on the canvases, no timidity. I looked up every anomaly online, settling on too much black tea, or maybe the wrong color shoes. We will never know all the things other people worry about. Treatments were on Wednesdaysthree Wednesdays on, one Wednesday offwith immunotherapy (the trial) every other week. I didnt know how the story would end. My little dog Rose, now ten years gone, came out to meet me, running giant circles of exuberance in the soft grass. I had a concrete reason to be careful about the germs I was bringing into the house. I flew to New York early the next morning, took a car to New Jersey, signed several hundred books, attended a cocktail-party fund-raiser for the Book Industry Charitable Foundation, gave a talk in a crowded town hall, got to my hotel room in Manhattan at midnight, got up in the morning to tape a segment for the Today show, then was back on a plane. PATCHETT: Yes. She wanted to know about the book I was going to write next, the book I had just barely started thinking of. My artwork is very reflective of my cancer journey, Cuozzo says. They knocked one another down like dominoes. She told me that she had to put Sooki on a leash when she was little because she ran so much. You cant go home, and we dont want you to go home.. So it really was what they said, a definitive spiritual experience? Shed seen people. In some ways its not unlike putting together my own life. Marianne Cuozzo, a three-time cancer survivor, can attest to the power of art, too. Karl came home and we sat on the couch and watched a storm tearing up the backyard. On the morning of September 11, 2001, I was sitting in a caf in the West Village with my friends Lucy and Adrian when a woman ran in and said a plane had just hit the World Trade Center. Afterward we sat up at the hotel and talked about this new coronavirus and whether the rest of her tour would be canceled. Im self-conscious about being in the way, especially if Im not at my best through chemo. We headed upstairs to lie side by side on our yoga mats, deciding to disregard my friends advice about staying on separate floors. Born to Burton and Miriam Raphael, Sooki grew up in Port Chester, NY and graduated from Hampshire College. Karl is not waiting on a thank-you note, I promise. Ann. I called the bookstore and let the staff know that Tom Hanks was on his way over. But her time as Hanks assistant brought her to a woman who would later become an invaluable friend during her cancer treatment and artistic journey. I tried it but it didnt work. FOLFIRINOX had also given her a profound aversion to cold. The overarching theme in many of the essays is the writing life, from the kindly advice she got as an undergraduate at Sarah Lawrence from the celebrated author Allan Gurganus to her near-religious experience reading the works of the childrens author Kate DiCamillo. It was Memorial Day, after all. Click here to dismiss this module permanently. These precious days Ill spend with you, I sang in my head. I was going to tell Karl what was happening but he was looking at his own phone. The artist said that the painting was a respectable copy from 1899 and sold for 25 francs (about $2,574 today). Are you not sorry you did it? I felt like it took me two minutes to put that much together. There was an abstract image, and it was clearly younot in a physical way, but as a soul. We went out to the street on that bright morning to see a fire high up in the distance. And the only time I ever feel paranoid about death is when I'm in the middle of a novel because I don't want the novel to die. KELLY: Well, let's dive in and talk about this one, which, as I said, is nonfiction. Emma and I would be speaking at a librarians convention downtown. I had liked her coat very much, those pink peonies as big as my hand. Ours was an ephemeral connection common to the modern world, writes Patchett. She started a kids clothing business. But she could. Once Im there for chemo, I will find a place where I wont be worried about being a good houseguest. Thats an important distinction and I encourage anybody who goes through this journey as a caregiver and then has to face loss, to think very carefully about how to move forward.. Ann Patchett and Tom Hanks' assistant? Most recently, she had a solo exhibition of paintings at ROSEGALLERY called These Precious Days, just like Patchetts title essay. She repeated her gratitude and I waved it away. The sky had turned a tenacious gray, the rain sheeting sideways. Winter came without a word. I went to Virginia to see my friend Rene Fleming in concert. We looked in the car. My goal was to maintain neutrality. Lucy said she didnt have time for this. Its funny, but all this time I was sure it was exactly that. Sooki had twice flown down to Mississippi with us to visit Karls ninety-eight-year-old mother. I should have thought of that one myself. assistant (as Susan 'Sooki' Raphael, Mr. Hanks) 2012 Game Change assistant (Mr. Hanks) TV Movie 2012 Larry Crowne assistant (Mr. Hanks) 2011 Big Love assistant: Tom Hanks assistant: Mr. Hanks TV Series 2006-2011 48 episodes The Pacific assistant: Mr. Hanks (Mr. Hanks) TV Mini Series 2010 7 episodes Where the Wild Things Are assistant (Tom Hanks) Sooki came outside and was caught in the spectacle. It meant she didnt have to sit out chemo for a week. I reminded him that in choosing to work, he ran the risk of killing our houseguest. Sooki, the middle daughter. She had set up her life in the basement of our house, a place we never went. The waiter came out and told us to get back inside. What will happen? Forgot your password? I tried to find a place for this new fact in the equation but all I could come up with was the obviousI didnt know her. Tell us. NPR's Mary Louise Kelly speaks with author Ann Patchett about her latest collection of essays, These Precious Days, and how she ended up quarantining with Tom Hanks' personal assistant. Karl can pull up and youll run in. But of course the thing to do would be to go, wouldnt it? How had she known something was wrong? I need to go home, she would say, like home was another place she could walk to. These months of exercise would save me. As the number spiked this week at 1700 U/L, I ran out of excuses, and my PET scan on Wednesday showed a return of the cancer to my liver. But I think Ann is the saint in the story. I just would worry too much about being a bad friend. Call me crazy, but that seems like a lot. We were well into March by then. Even as Sookis white count continued to hover in the neighborhood of nonexistent, her CA 19-9 cancer marker number (that unreliable indicator we relied on) was dropping. Born to Burton and Miriam Raphael, Sooki grew up in Port Chester, NY and graduated from Hampshire College. Except it was Sooki, and I liked her very much.. Karl was standing in the doorway. Outside the rain was dark and lashing. I sent more books: books Id written, books I thought shed like, Kate DiCamillo books to be read with her grandchildren. I tugged at Karl and the three of us went downstairs with the dog. Nell stayed for six months and we loved her. She made props for TV shows. PATCHETT: Yeah. Why had I been so careful? All rights reserved. With our hands on our shoulders we turned left and right, left and right, endlessly. She had worked for Tom for almost twenty years, and part of her responsibility was to go out on location before he arrived, find a place to stay in Morocco, get a driver, figure out the food, figure out what there was to see if there was any time, which usually there wasnt. That night there was still no power, and so we lit candles. Had we not talked about the part where he stuck around to oversee our health and safety? Niki works at the bookstore. I get asked sometimes, who's your favorite author? I've got mail today, from one of Hollywood's top stars - Tom Hanks. Once a pilot, always a pilot. Miraculously, after a spate of vigorous exercise there would be enough white cells to slip her in just under the wire. Such a beautiful coat, I said to her. I said I thought it would be easier to be bald. This chemo wasnt the nightmare FOLFIRINOX had been. I should have planned better, she said. There was no stopping it. The paintings came from a landscape of dreams, pattern on pattern, impossible colors leaning into one another. Sooki had come to our house thinking shed be staying with someone who was gone half the time and busy the other half of the time. Dont do this., That was when her eyes would well up. I shook my head. She brought her paintings upstairs to show us: a person who was too shy to say good night most nights was happy for us to see her work. To the best of my knowledge, she never quit. I asked her about her trip to Stanford for the biopsy, her flight to Nashville. I'll see if I can get her into a trial here in Nashville. Sooki washed her sheets and towels, cleaned the bathroom, vacuumed. It was just the three of us now, Sooki and Karl and me. And he said, oh, well, ask her if she wants to send me her files. Surely there would be a story there for one of us. He claims our lives are better for all the people I bring into the house. She didnt know. Sooki was the kind of person who could do anything, and did just about everything. Surely there was a piece of this story she was leaving out because the next thing I knew shed sailed off with them. She had been in the house for only a few minutes; there hadnt been enough time to lose anything. She was Tom Hankss assistant and there was work to do. I knew how to do that. She joined the ships crew. You dont think this is crazy?, I didnt say that, but I know youre trying to help Sooki.. Who knew there was so much color? What was the line of childrens clothing called? I cant thank her enough for how she raised me and because it was her who gave me all of that, um, spiritually, she, she just filled my heart with love and joy. Click here to dismiss this module permanently. My mother was a pilot, Sooki said, and there she was, suddenly at ease. Cause and effect are so much clearer in novels than they are in life. But this was right, and we would all be fine. We said our goodbyes and Adrian and I walked downtown to see what had happened. When Patchett connected with Tom Hanks, who is a fellow author and book lover (among other things! They sailed to St.Barts in a beautiful old wooden boat named Christmas. Its essential to the life of a novelto come upon the turn you never saw coming. Shed scarcely left the house for more than three months and yet it was impossible to push the world back into the Mary Poppins suitcase. Look at what a success this time had been! The story has started without my realizing it. Although his superhero mother will not get to see him play in the NFL, Farley will take many lessons he learned from her and apply them to whatever challenges he faces in life moving forward. The paintings came from a landscape of dreams, pattern on pattern, impossible colors leaning into one another. This is whats been missing.. In a heartfelt tribute after she died, Wilson told followers about the lovely artist that was her dear friend and shared some of her vibrant paintings. Ours was an ephemeral connection common to the modern world. I told Sister Nena the whole story while we sat in the waiting room, her foot propped up on a wheelchair. I thought about how extraordinarily famous you would have to be to have someone like that working as your assistant. She apologized for her late response, saying that shed had a medical procedure and hadnt been in the office. The road forks and forks again. I presented him with the studies from Johns Hopkins. Really? I picked up one of the bigger islands and moved it gently back and forth. Parents, siblings and children of someone with pancreatic cancer are considered high risk for developing the disease because they are first-degree relatives of the individual. The same trial she was part of in Nashville had finally commenced at UCLA, twenty minutes from her house. But a few months later, I got an email from Tom Hanks early in the morning. Everything filled in. Absolutely. I asked him how he would feel about my extending an invitation to stay. Sooki Raphael leaves her canvas as colorful as she has led her life. I didnt know you had a husband!! And I keep talking to Sooki, and I just think, this is the most interesting person I've met in I don't know when, which is odd because, of course, I'm also meeting Tom Hanks for the first time PATCHETT: You know, who's terrific, right? People were out with their dogs. Want to change your email address or password? Small, flat islands of boiled wool were resolutely attached to her scalp by the 2percent of hair that had not fallen out. She agreed to stay for a few nights, but after that she said she would rent a car and find a hotel. I hear you, and I know that if I were in your shoes and you were asking me to stay with you it would seem impossible. Sooki was desperate to be helpful. Her paintings are full of light and life, as Sooki was., And despite not having any formal artistic training, Raphael did very well. On the porch, Sparky joined in. I think about you often and hope for the best. I had just finished my latest novel, and on a lark of the highest order, I sent him an email asking if he might record the audiobook. Everyone was wide awake, waiting up to see if the world was going to end. Karl worked out the plans. . I could see her doing it. The fact that the two of you want me here, that you love me, that you believe in meit makes me believe in myself. Still, it seemed possible I could get off the ride early by expelling the mushrooms. So the trial was supposed to start at UCLA a couple of weeks later. Implicit in the idea of everyone getting together was the reality that this could be the last time it would happen. "They have it," she said. Raphael had a long career in the film industry before indulging her passion for painting. Shed fallen down some stairs outside of church the night before and twisted her foot and now that foot was swollen and sore. Did you have a hard time?. Theyve been exposed to it?. Shed only been here for a couple of hours. She was twenty-one. Shes married, I said. Stranded at home, Karl studied to get his instrument rating as a pilot. Then came the moment one feels on a roller coaster just as the bar locks into place and the car starts to pull up, the body pressing back into the seat, knees out ahead, and you think, Wait a minute, was this the best. The four frozen caps were to be stored in a cooler filled with fifty pounds of dry ice. I had put a notebook and a pen beside me on the floor before we started. Thought-provoking commentary and opinion on politics, books and the arts. Twenty-five people died in Nashville the night of those tornadoes. The plan was that she would go home to Los Angeles during her weeks off, and once UCLA started the trial, she could go home permanently. Many nights after dinner, I would ask Karl where Sooki was and then we would start looking around for her. The actor who starred in the romantic movie You've Got Mail sat down and wrote me a letter in his California office in Santa Monica. How is it possible? I said as I complimented her again and again. I could see themmy family and my friends. She painted and slept and did her work; she had her Zoom meetings and her Zoom gatherings with friends. It turns out that the trial that they were running at the hospital where he worked was exactly the trial she needed. I need to find a Belvedere martini.. It was so hard for her to talk. Despite their breadth and variety, the common thread among these essays is how personal they are, and how wide a . This is what I need, she said, excited. And we were. I saw my mother and sister. Even if it wasnt a perfect plan, it was better than doing nothing. All day long Sooki emailed me pictures of her family with the subject line Where is our other sister? We can go up and back the same day.. You two go and Ill have dinner ready by the time you get back. It was the practical solution, and so they left. There are so many things I understand now, she said. How it happened is told in the title story ofThese Precious Days, Patchetts second collection of essays. I like myself here, she said softly. We were loaded with plans in those days. Then youd have to park. I saw her as an artist. RoseGallery featured Sooki Raphael's work in the past. Our hearts have been filled with the comfort his films have given us, and that, coupled with the fact that hes a nice man, made it easy to line up a group of booksellers who were eager to pitch in. I had met Sooki, after all. There was no reason to offer unsolicited opinions on a subject I knew nothing about to a person who had just gotten into my car, but the thought of a frozen gel pack on my own head struck me as boundless misery. Never want to see this again? And if I did have a favorite, I definitely would not admit it publicly. Sooki didnt talk about her husband or her children or her friends or her employer; she talked about color. She had to make her train. I no longer needed the protection. We were sitting at the bar at California Pizza Kitchen at four oclock in the afternoon. I didnt know what I was supposed to do, she told me later. A year and a half had passed since I had picked up his book in my office, and this was where it had taken me: Tom Hanks was willing to read The Dutch House. I was so afraid Id killed you.. He knew. People die of this.. Karl is a doctor, but Sooki had been treated at UCLA, Stanford, Duke, and Memorial Sloan Kettering. She looked like Los Angeles in winter. But I didnt forget. Karl has never once complained. Sooki thought about it, or she thought about having to tell me. I cant tell you how appreciative I am. I would be gone for the night, and once I got back my friend Emma Straub was coming to visit. It becomes a path into the woods. For what? he asked. He told SurvivorNet that after losing his wife, Alice, to a two-year battle with ovarian cancer, hell never really get over losing her, but he does hope to move forward. I could see what the cancers given me. Daughter, husband, sister, friendnone of the people scheduled to visit her could come now that the world was on lockdown. we asked. Sitting there in her shaggy pink rock-star coat, Sooki told me how much shed come to hate the cold. Wait and see. We talked about singing and touring and about the Opry. They arent hard to come by around here; my office is made up of piles of books, mostly advance-reader copies that have been sent to me in hopes Ill write a quote for the jacket. I keep throwing things out. Her mother is the novelist Jeanne Ray. Email tilts toward the overly familiar. Ken will like it here, too. People are not composed entirely of their facts, after all. Sooki Raphael leaves her canvas as colorful as she has led her life. At the heart of her new collection is a 66-page story about her transformational late-in-life friendship with Sooki Raphael, an artist and the longtime assistant to actor Tom Hanks. Sooki left for yoga just as the waitress was bringing our eggs. I was happy, even thrilled, to stop traveling. But over time the idea drifted to the back burner. Lets go back to the hotel. It was shallow, but perfect, and the early morning, Sea stones with holes in them have long been regarded as magical talismans, carried for protection, or safe passage. I flew back to New York for two more events, the first one in Connecticut. And the moral of the story is that really is what I have been doing my whole life ever since. We breathed deeply and flexed our spines. I told her, of course, that she would stay with us. She told me how lovely it had been to lay down the burden of her own vigilance. When Im putting together a novel, I leave all the doors and windows open so the characters can come in and just as easily leave. How could anything have been saved? They told me the story later: How after they landed, when they were all standing together on the lawn outside the small airport, a police officer came and told them they had to disperse. She was teaching at Bennington, in Vermont, and this was the first day of classes. Don't have an account? Things can get very confused. Use this bar to access information about the steps in your cancer journey. Karl loved Sookis family and they all loved Karl. With every passing day I seemed less able to say, Do you want to talk about this? It was possible, and I had no intention of thinking about it. Sister Nena shook her head. Reading about other peoples hallucinogenic experiences is like listening to other peoples dreams at a dinner party. Sooki hadnt answered the question, but that was the day I felt as though we started talking. Can empty houses help solve homelessness? But in her post, Wilson referred to her as the one thing she was destined to be: an artist. KELLY: Wow. And this led to you meeting Sooki. Having lost his mom to breast cancer in 2018, he knew he wanted to be extra careful during the pandemic. Karl looked up the name for it on his phone. Youre detoxifying all your inner organs.. In case you havent read it, Uncommon Type is a very good book. lives. The truth was that we had no idea how long we were going to be together. Then she went downstairs and went back to sleep. It hadnt occurred to me that he might say yes. But all Sooki did was help me. Whether she was trying to hold on to her own sense of privacy or what she perceived to be our privacy, I didnt know. Pay attention every minute. The chemo, the clinical trial, the yoga and the vegetables, the prayers of nuns and all the time to paintwhat if it added up to something? Register, Tom Hanks and Rita Wilsons Assistant Died of Pancreatic Cancer. And anyway, UCLA had suspended its plans to start the clinical trial for recurrent pancreatic cancer. Out on the tarmac, I could see her again exactly as she was, resplendent in her velvet coat, her black beret. Sooki exuded such an air of self-sufficiency that I scarcely thought to worry about her. Well, over the next few minutes, we're going to revisit the moment I did admit that there is one author whose books I am guaranteed to gobble up, who I will read every time - Ann Patchett. The chemical tide that rose in Sookis blood had not only caused her hair to fall out; it caused that hair to mat into a solid surface. I dont want you to feel like you have to stay downstairs, I said. Only on weekdays and not on the Fourth of July, because apparently cancer knows to take weekends off and observe federal holidays. There were no words because it wasnt about words. What about the children who were left behind in that house she hated? She and Ken put what mattered most in the car and started driving, waiting to see which way the wind would shift the wall of flame. I had set my intention to help my friend, to hold her hand and go with her while she went to peer over the cliff, the cliff that, coincidentally, I fell off. All that was left was the wall around what had been their garden. It may resonate. There she was in the doorway, outlined in neon tubing. It has to be one of the most extraordinary stories of lockdown how Tom Hanks's assistant Sooki Raphael, undergoing treatment for recurrent pancreatic cancer, came to be living in the basement of the novelist Ann Patchett and her husband Dr Karl VanDevender. Hard and cheer a necessity up to see what had been quite memorably deboned start around! Into the house for only a few minutes ; there hadnt been enough time to lose.... 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